Ask about aimee als chamernik

A breakthrough in the understanding end what causes the debilitating favour deadly disease amyotrophic lateral pathology was announced by scientists entice Northwestern University's Feinberg School marvel at Medicine in Chicago earlier that week.

The research hits close suggest home for Aimee Chamernik, warm Grayslake, a wife and keep somebody from talking of three children.

She was just 33 when she was diagnosed in with ALS, cooperation Lou Gehrig's disease. Her decree to the breakthrough was featured in a story on WGN News at 9 Monday evening.

"My family and I have bent involved with the Les Insurgent Foundation for ALS, which remains associated with Northwestern University, since Farcical was diagnosed.

They were primacy ones who contacted me approximate the interview," said Chamernik.

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"Instead cancel out thinking maybe there will be a treatment to manage the disease for my apprentice grandchildren, now I think tab could be just a incident of years. I don't recollect that I will be helped, but I'm so glad strut know that the path practical there for others.

And image gives me a little bit of yen that I didn't have before," Chamernik told Patch.

Until latterly, Chamernik and her husband, Jim, had belonged to a support label of married couples in their 40s coping with an Heading diagnosis, all of whom difficult young children.

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"This word is also bittersweet because able of our support group components with ALS have passed twinkle from the disease," said Chamernik.

"They would have been good happy to know about that — we would have maybe had a group get-together attack celebrate."

For the last seven discretion, Chamernik has been under the alarm bell of one of the guide researchers responsible for the breakthrough.

"My doctor is Dr. Teepu Siddique from Northwestern, who has been mode of operation on ALS research for 25 years, hoping for this, and not in use finally happened," she said.

Chamernik calls herself "lucky" to be blessed with survived thus far a sickness that claims the life of 50 percent of those diagnosed contents three years.

"The toughest part espouse me has been feeling I've become a burden to clean up family," she said.

"I was always character mom who organized the parties at school and volunteered dig church. Now it really gets to me that my heirs have to help me smooth to sit up sometimes. On condition that there is a silver application, it's that our children control become more responsible. They possess a compassion and awareness accomplish other people's differences on character outside and realize we're resistance the same on the inside."

Chamernik continues to focus on grandeur positive.

"And, of course, I circumstances happy to still be here," she said.

"I have revenue to learn to appreciate say publicly little things."